Updates & Activity

2022 Senior Satisfaction Survey with Medicare Part D from Medicare Today

Each year Medicare Today conducts a nationwide survey to find out how seniors feel about their coverage of prescription medications through Medicare. This year, the Senior Satisfaction Survey found that beneficiaries’ satisfaction with the coverage Part D provides has actually increased over the year, speaking …

2022 Senior Satisfaction Survey with Medicare Part D from Medicare Today Read More »

Event: Northern Utah Coalition, Inc. Spring Bowling Fundraiser

Juneteenth Events

Presented by the Project Success Coalition. More information at: http://projectsuccessinc.org/juneteenth-2022/

Society of Utah Medical Oncologists and the Association for Clinical Oncology strongly urge the Senate Business and Labor Committee to pass Senate Bill 139

Letter excerpt: Dear Chair Bramble and Members of the Senate Business and Labor Committee, The Society of Utah Medical Oncologists (SUMO) and the Association for Clinical Oncology (ASCO) are pleased to support Senate Bill 139: Prescription Cost Amendments, which would prohibit health carriers in the …

Society of Utah Medical Oncologists and the Association for Clinical Oncology strongly urge the Senate Business and Labor Committee to pass Senate Bill 139 Read More »

Utah Rare Disease Advisory Council (RDAC) Policy Statement on Copay Accumulator Programs

RDAC Position: The RDAC believes that copay accumulator programs impose a considerable burden on the community of people with rare diseases, adversely impacting their health and wellbeing. The RDAC recommends banning copay accumulator programs in the State of Utah. Read the full policy statement below.

ABC4 News story: Co-pay assistance protection bill could save vulnerable families thousands

UTAH (ABC4) – The minute Penny Hepworth was diagnosed with cystic fibrosis, her mother Jennifer became an expert on the condition and health insurance.  “It’s not unusual for a parent with a child with cystic fibrosis to be on the phone with the insurance at …

ABC4 News story: Co-pay assistance protection bill could save vulnerable families thousands Read More »

Cystic Fibrosis Foundation urges support of SB 139 to ensure continued patient access to quality, specialty care

Letter excerpt: Dear Chairman Buxton, On behalf of the nearly 500 people with cystic fibrosis (CF) in Utah, we write to express our support for SB 139, which would require insurers to apply third-party assistance for drugs without generic alternatives to out-of-pocket maximums and other …

Cystic Fibrosis Foundation urges support of SB 139 to ensure continued patient access to quality, specialty care Read More »

Desert News Op-ed: Lawmakers should do this to help families dealing with cystic fibrosis

With a simple, straightforward reform, the Utah Legislature could end copay accumulator programs that add to financial burdens. Paying for innovative, effective, lifesaving medications for families like ours who have a child living with a chronic and deadly disease is a huge financial burden that …

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Patient organizations to Senate Business and Labor Committee Members: Support SB 139

Letter excerpt: As a member of the Utah All Copays Count Coalition (UACCC), a group of patient-focused organizations and individuals working together to ensure Utahn’s can afford life-saving medications, we ask for your support of SB 139 and encourage passage this legislative session as is. …

Patient organizations to Senate Business and Labor Committee Members: Support SB 139 Read More »

Patient organizations in letter to Utah Delegation urge opposition to H.R. 3

Letter excerpt: Dear Members of the Utah Congressional Delegation, On behalf of the undersigned organizations and the many constituents we represent, we would like to express our concern with the reintroduction of H.R. 3, The Lower Drug Costs Now Act, and urge you to oppose …

Patient organizations in letter to Utah Delegation urge opposition to H.R. 3 Read More »